Manager, Patient Education & Events

Role Overview

The Manager, Patient Education & Events leads the development and delivery of Cure HHT’s educational programming and community event experiences. The role designs and executes virtual and in-person initiatives—such as webinars, patient conferences, and learning resources—to turn medical information into accessible, actionable knowledge for patients, caregivers, and healthcare providers.

Responsibilities

Educational Strategy & Program Development

• Create and execute an annual education plan aligned with Cure HHT’s mission (Find, Treat, and Cure).
• Design and produce webinars, virtual workshops, and online educational series for patients, caregivers, and providers.
• Partner with medical experts, the Scientific Advisory Board, and internal teams to ensure educational content is accurate, clear, and accessible.
• Work with Marketing & Communications to translate complex medical information into easy-to-understand materials.
• Measure education impact using participation metrics, feedback surveys, and impact assessments.
• Revamp and reimagine regional patient conferences with new formats to increase U.S. community participation.

Event Management & Experience Design

• Plan, coordinate, and execute National and Regional Patient and Physician Conferences with strong participant experience.
• Organize regional patient events that expand access to education and strengthen local community ties.
• Manage event logistics, budgets, vendors, speakers, and volunteers, coordinating across departments.
• Partner with the Senior Manager, Community Engagement to feature community voices, patient stories, and ambassador participation.
• Coordinate with Philanthropy to integrate recognition and sponsor visibility (without managing direct solicitations).

Content & Resource Development

• Oversee creation and updates of educational resources such as brochures, toolkits, guides, and digital learning materials.
• Maintain an engaging, accurate education section of the Cure HHT website with Marketing & Communications.
• Audit and update resources with timely information for diverse communities.
• Identify new topics, tools, and delivery formats to improve accessibility and engagement.
• Ensure materials align with brand voice, diversity & inclusion commitments, and mission.

Collaboration & Partnerships

• Align educational content with community needs and emerging trends alongside the Senior Manager, Community Engagement.
• Coordinate research roundtables and provider workshops with the Director of Research and clinical experts.
• Serve as a liaison for Cure HHT’s participation in external conferences (e.g., NORD, ASH, Rare Disease Week) to support brand visibility.

Requirements

• Not explicitly stated in the provided posting.

Nice-to-Haves

• Experience managing and delivering educational programming and conferences (implied by scope of responsibilities).
• Strong cross-functional partnership capability with clinical, marketing, research, and philanthropy teams (implied by recurring collaboration needs).